“I often wonder why it is so hard for our community, the childhood cancer community that is, to get the equal attention, the equal funding, the equal exposure that many other cancers receive. “
We want others to not only hear us, but actually LISTEN to us. We want to be given the same amount of funding that other cancers get, not the measly 4% that is allocated for our kids.
I often hesitate to continue writing about Sam and childhood cancer because I often get this vibe that people think now that Sam is done with treatment that we, that I, should just move on, but it’s not that simple. I feel lucky every single day we are where we are, that Sam is still here and that treatment is done. Some don’t get to walk away with a damaged child, they walk away with no child at all. As the mother of a child whom so far is thriving, that is a tough pill to swallow. I believe its called survivors guilt. It’s hard to explain. The only way I can lay it out is that you are beyond grateful that your child is still here, but feel this odd guilt that your child survived and your friends child didn’t. So many different emotions and feelings go into this…
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